Two-year-old Priscilla and her mom Jillian, from Bedford Virginia, are the 23rd family served by the Stone Creek Village Apartments of Yellow Door.
Priscilla has Pyruvate Carboxylase, or PC, deficiency, a rare genetic disorder characterized by failure to thrive, developmental delay, recurrent seizures and a failure of the body to produce the necessary fuels for energy. Mom Jillian said the disease causes her daughter’s organs to shut down. PC deficiency is incredibly rare, Priscilla is one in 250,000 children born with the disease. There’s no known cause and no known cure – a heartbreaking fact Jillian knows all too well. Her first baby, Scarlet, died of the same disease at only nine-months-old!
Jillian said “I’ve already let one baby go, I can’t do that again.”
After waiting on the liver transplant list, Jillian and Priscilla rushed to the University of Virginia Children’s Hospital for a 12-hour surgery.
Jillian’s Facebook post at Priscilla’s Purpose said the surgeon said that while still on a breathing tube with lots of medicine, Priscilla did fantastic – better than expected.
Her mother said it’s a beautiful gift for Priscilla to live a long life. With the security provided by the lodging of Yellow Door, mom can concentrate on Priscilla and her recovery.
A sincere thanks to everyone who has made Yellow Door a success.