Meet Lilia
Lilia is being treated for a very rare disease which will require kidney and liver transplants.
At just four months old, Lilia is facing challenges no child should have to endure. What initially appeared to be dehydration led to the discovery of kidney failure and a diagnosis of primary hyperoxaluria type 1, an extremely rare genetic condition affecting only 1 to 3 people in a million.
Today, Lilia is receiving continuous dialysis at UVA Health Children’s while awaiting a life-changing liver and kidney transplant.
While Lilia continues her fight, her family has found a home away from home at Dreamer Apartment, one of Yellow Door Foundation’s apartments. Her mom remains by her side, while her dad and big sister visit on weekends. Having a place to call home near the hospital provides comfort, stability, and the opportunity to stay connected during an incredibly difficult journey.
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The Yellow Door Foundation can only continue providing critical support to families through generous donations.