Meet Evan
Evan visited Boston, Philadelphia and Washington DC before coming to UVA Children’s for a heart transplant.
Evan is a brave and strong 12-year-old. He was born with a series of congenital heart defects known together as “Shone’s Complex.” In addition, he has Pulmonary Hypertension and Interstitial Lung Disease. Despite having countless surgeries and procedures and taking many medications every day, Evan’s lungs have not improved and he was in heart failure. With no other options left, he was listed for a heart/double lung transplant on February 10, 2021. After being seen in Boston, Philadelphia and Washington DC, he came to UVA Children’s where he received a heart transplant.
Evan’s mom is staying nearby at The Nest during the week as Evan continues to require acute care at the hospital. He is one of eight children, so dad is home taking care of Evan’s siblings with visits to Charlottesville on weekends.
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